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CARTON'S CORNER
A NOTE FROM THE FOUNDER
"Thank you for your support of TicTocStop. Because of your generosity we are closer than ever to being able to improve the quality of life for people with Tourette Syndrome. To my kids, and the thousands like them that bravely face their fears everyday, your strength motivates me to never give up in our quest to find a cure for TS."
WHAT IS TIC TOC STOP
CAMP CARTON
TicTocStop is a non-profit organization founded by WFAN Radio and CBS Sports Personality Craig Carton. which commissioned a pilot study to test the effectiveness of an oral appliance (much like a modified mouthguard for lower teeth) designed to reposition the lower jaw to lessen the severity and frequency of motor and vocal tics associated with Tourette's Syndrome and Chronic Tic Disorder.
What happened in the pilot study will change the world!
In addition to funding important research The TicTocStop Foundation also created and completely funded Camp Carton, a one week sleep away camp for kids with Tourette Syndrome.
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"As many of you know, I have Tourette Syndrome as do two of my children."
Those with Tourettes fantasize for a cure. And now, this dream may be a reality in the very near future. I was skeptical when the notion was first presented to me but I had the opportunity to see patient trials and videos with persons who had significant tic, remarkably and suddenly tic free.
I am motivated now, more than ever before to raise the much needed funds to make this cure a reality! With your help we can make the lives of those living with Tourettes better - we can accomplish this immediately.
Approval from the FDA is required and requires clinical trials. With sufficient funding, the study protocol can be completed now and submitted to the Institutional Review Board, allowing for the clinical trials to take place through the summer of 2014.
Separately, but related, I have started Camp Carton: a one week summer camp experience for 40-50 children with Tourettes through the Tic Toc Stop Foundation. Camp Carton will be exclusively for children with Tourettes. For those selected, this camp will be entirely paid for through the foundation. Camp Carton will give children with Tourette Syndrome the opportunity to come together to feel connected and have fun all through a specially designed summer camp program."